Scientists estimate that there are 50,000 to 100,000 pieces of genetic information, or genes, in each of our cells. At this time, researchers do not know which gene causes FOP. They also do not know what causes the "genetic switch" which controls FOP to turn on and off at various stages in an individual's life...
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Our 2nd Annual Hayden's Hope Benefit, held last October, was a great success. See some of the photos and link to shutterfly.com to watch a slideshow of the party.
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Thanks for taking the time to read about FOP and Hayden. We really appreciate it. If you'd like to get more information about Hayden, this site, FOP, here are some useful contact information.
To reach us by email, click here.
To reach us by US mail, please write to:
Megan and John Pheif
Hayden's Hope
160 Monte Vista
Mill Valley, CA 94941
To reach the International FOP Association:
P.O. Box 196217
Winter Springs, FL 32719-6217
Telephone: 407-365-4194
E-mail: together@ifopa.org
