The search for potential treatments currently involves the development of two drugs. One of these drugs helps prevent the formation of blood vessels which can lead to the formation of extra bone.

June 2007: What Needs To Be Done

June 2006: Dr. Kaplan named by Newsweek as one of “15 People Who Make America Great”

April 2006: 15th Annual Research Report for Dr. Frederick S Kaplan from the FOP Lab at University of Pennsylvania

May 9, 2006: Finally,with Genetic Discovery, Hope for Escape from a Prison of Bone by Michael Mason

November 8, 2005: Planned Benefit Raises Hope

July 31, 2005: Article in USA Today, "A Devastating Diagnosis" puts spotlight on FOP

July 15, 2005: Announcing the 3rd Annual Hayden's Hope Fundraiser for FOP Research, this November 19th, 2005 at Alta Mira Hotel in Sausalito, California

May 31, 2005: Megan Pheif is elected to the Board of the IFOPA

May 31, 2005: San Francisco Chronicle: Cruel disease turns sufferers into statues
UCSF starting world's 2nd center on rare disorder that causes crippling bone growth

February 2, 2005: View photos from the 2nd Annual Hayden's Hope Benefit, held last October in Sausalito!

November 1, 2004: A warm thank you from Megan Pheif for those who helped and donated their time and gifts at the 2nd Annual Hayden's Hope Benefit

May 24, 2004: An urgent plea from our FOP expert, Dr. Frederick S. Kaplan of the University of Pennsylvania (links to the IFOPA website) >>